OUR PATIENTS...


If you would like to share your story or have pictures you'd like posted here, please send them to "lovella@core.ucsd.edu".

Letter from a Ruth Ann Ahnen (a mother)    1999

 Letter from Sylvia Douglas (a mother)   1997

 Letter from an adult cystinotic...    1997
"Cysteamine Therapy for Cystinosis: Post-Transplant and Beyond


Cystinosis Central