Alert: Pregnancy and Cysteamine Therapy


This is a reminder for all females of childbearing age who currently receive cysteamine for nephropathic cystinosis. Cysteamine has not been tested regarding its effects on the fetus. If there is a risk of pregnancy this should be discussed with the physicians involved.

- William Gahl, M.D., Ph.D.
 Head, Section on Human Biochemical Genetics, NICHD.


Cystinosis Central  |  Updates & Info | Cystagon